HFA Blood Sisterhood Mobile App

Frequently Asked Questions:

How do I specify a dosage for my medication treatment?
When typing in a new medication or treatment, just type in the dose too. The mobile app is designed to be flexible and allow you to type in any treatment name, dosage, therapy, or abbreviation for that info.
My menstrual cycle is very irregular. Can I disable the app's predictive calculation?
This mobile app was designed specifically for women with bleeding disorders. Click on the gear in the upper-right to access your Settings. Click on "Your Preferences" and disable "Estimate Next Period."
I do not want to document intimacy in this app. Can I hide the option?
Click on the gear in the upper-right to access your Settings. Click on "Your Preferences" and disable "Track Intimacy."
I take a medication every day. If I log it, every day on the calendar will be marked with a treatment marker. Can I configure this?
Yes! Click on the gear in the upper-right to access your Settings. Click on "Manage Treatments" and select the desired treatment. Toggle the "Show a marker on the calendar for this treatment" option.
I no longer take a medication any more. Can I remove it from the list of treatments that I pick from?
Yes! Click on the gear in the upper-right to access your Settings. Click on "Manage Treatments" and select the desired treatment. Toggle the "Hide this treatment on the available treatments list" option.
I want to share my data with my healthcare provider. How do I do this?
Click on Reports on the bottom tab bar. Select a Report Type, a Start Date, and an End Date and click on the "Export Data to Email" button. After confirmation, an email will be sent to you from sisterhoodapp@hemophiliafed.org with your private data attached. The export file will be in comma-separated format, which can easily be loaded into an office spreadsheet application. You may then choose to share the data with your healthcare provider.
How do I create an alert reminder to take my medicine each day?
Click on Alerts on the bottom tab bar. Choose "Add a Reminder." Type in a name for this alert. Type in a label, which is the text that will be displayed on the alert. Choose Daily and the time of day. At the bottom, you may select a treatment from the previously-used treatments list. Click on Save. This alert will now remind you each day. When it alerts, you may press Continue to automatically record that you have taken the selected treatment.
How do I create an alert reminder to record my tampon and pad product usage each day?
Click on Alerts on the bottom tab bar. Choose "Add a Reminder." Type in a name for this alert. Type in a label, which is the text that will be displayed on the alert. Choose Daily and the time of day. Toggle on the "Only Alert if Bled Today" option. Click on Save. This alert will now remind you each day, but only if you had already noted that you were menstruating today.
I want to use more than one device to document my monthly cycle. Can I do this?
Yes! The account system for Sisterhood is based on your email address. Create a new account on the first device. "Add an Existing Account" on any additional devices. All of the devices will syncronize with each other.
My daughter has a bleeding disorder. I'd like to be able to monitor her cycle journal. Can I do this?
Yes, with her permission of course. Your daughter may give you her password. On your device, simply "Add an Existing Account" and type in your daughter's name, email, and password. Her account will be added to your device. All of the devices with her account on them will syncronize with each other.
I have lost or traded in my old device and lost all of my personal history! Can I get it back?
Download the latest version of Sisterhood from the AppStore on your new device. "Add an Existing Account" and the app will automatically download your cycle history.
I want to completely remove my account from this device. How do I do this?
Click on the gear in the upper-right to access your Settings. Click on "Manage Account" and choose "Delete Account From Device." After confirming this choice, the app will remove the currently-logged in account from this device. If you choose to add the account again, simply use the "Add an Existing Account" feature.
I have an idea for a great feature you should add to Sisterhood.
Excellent! We would love to hear your ideas. Please contact us..
Does Sisterhood run on the iPad?
Yes. Sisterhood works on iPad, iPhone, iPod Touch, and Android devices.
Do I need a internet (WiFi or data) connection to use Sisterhood?
No, not all of the time. Sisterhood syncronizes your data with the server database when you are connected via WiFi or cellular connection. If you do not have internet connectivity when you record your cycle information, your data is only stored locally and will be synchonized later.
What is the Hemophilia Federation of America (HFA)?
HFA is a non-profit 501(c)3 organization incorporated in 1994 to address the evolving needs of the bleeding disorders community. We serve as a consumer advocate for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA's ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, and availability of the products the individuals of this community require.
What is hemophilia?
Hemophilia is a hereditary blood clotting disorder that results in excessive bleeding. In about one-third of the cases, there is no family history of the disorder. The underlying cause is missing or deficient protein (called factor) that is needed for blood to clot. The bleeding can occur spontaneously and/or after injury. Bleeding episodes may be external or internal into joints, muscles, the abdominal cavity, the brain, and other organs. Untreated bleeds can lead to crippling deformities of the joints or life threatening bleeds within the body. Currently, there is no cure.
What is von Willebrand disease?
von Willebrand Disease (vWD) is an inherited bleeding disorder with similarities to hemophilia. About 1-2% of the U.S. population (over 4.5 million people) are believed to have the gene. vWD is caused by a decreased or defective function of a protein called von Willebrand factor (vWD), which is necessary for normal blood clotting. The disease affects men and women.
Who is affected by the disorder?
According to the Centers for Disease Control and Prevention (CDC), Hemophilia affects approximately 20,000 people in the United States. About 400 babies are born each year with the disorder. All ethnic backgrounds and economic groups are affected equally.
Do women have bleeding disorders too?
Absolutely! About 1% of women in the United States may have a bleeding disorder; many are left undiagnosed. To learn more, visit the Blood Sisterhood webpage.
Could I have a bleeding disorder?
HFA does not give medical advice or engage in the practice of medicine and recommends that you consult with your physician or local treatment center before beginning any form of treatment.